2020 Tentative Schedule

Thursday April 23rd

4:00 to 5:00 pm: Steering Committee Meeting:  Alpine Room

Friday April 24

7:15 Guests have breakfast at University Guest House or light refreshment served in vendor area, Granite Ballroom

8:00 Introduction and Welcome: Ted Liou, Douglas Ballroom

Session 1A:  Mental Health Challenges for CF

Goal – To examine mental health challenges for CF patients of all ages

8:05-9:00: Stuart Elborn – Keynote Speaker (including case presentation on Mental Health)

9:00-9:45: Dixie Durham & Kim Matias - Food Insecurity: CFF national recommendations and local implications

9:45-10:00:  QI on mental health or food security

10:00-10:15:  Break

Session 2:  New CF Guidelines 

Goal – To review new treatment guidelines for the management of advanced CF lung disease and transplant

10:15-10:45:  Dave Young - New Advanced Lung Disease guidelines

10:45-11:15:  Barbara Cahill - New guidelines for lung transplant

11:15-12:00: Theodore G Lou - Colon Cancer and CF (including a case presentation)

12:00-1:00:  Lunch for attendees, visit vendors and QI posters

Session 3:  Exercise and Wellness for Patients and Providers

Goal – To examine the role of exercise and other wellness techniques for patients and providers

1:00-1:45:  Rajeev Bhatia – Keynote Speaker: Exercise Testing in CF – A Hidden Potential

1:45-2:00: Kayla Szendre - Implications of Handgrip Strength in CF

2:00-4:00:  Officer’s Club - Breakout sessions (choose 4 of 5) 25 minutes each with 5 minutes to move between: Stretching, Mindfulness, Inpatient Rehab, Outpatient Rehab, Motivational Interviewing

Session 4:  Quality Improvement & Partnership Enhancement

Goal – To further the mission of the MWCFC. To highlight the approach to and importance of patient-centered care.

4:00-4:45:  Fadi Asfour - Applied QI in Pediatric Cystic Fibrosis from Diagnosis to Transition

4:45-5:00: QI presentation - partnering with your care center

5:00-5:05:  Closing remarks:  Fadi Asfour

Saturday April 25

7:15 Guests have breakfast at Guest House or light refreshment served in vendor area, Granite Ballroom

8:00-8:05: Intro: Katie McDonald and Fadi Asfour, Douglas Ballroom

Session 5: Exploring the Future of CF

Goal – To explore the emerging clinical challenges of patients with CF.  

8:05-9:00:  Bruce Marshall – Keynote Speaker

9:00-9:45: The problem of unexpected life - case presentation and panel discussion

9:45-10:00: Break

10:00-10:40: Jake Robson - Dyslipidemia and Obesity

10:40-11:00: Tatiana Yuzuk – Essential Fatty Acid Status

11:00-11:40: Fred Adler - MWCFC Biomarker Results

11:15:  Wrap up